Being part of the BRC Patient and Public Involvement (PPI) group can be as small or as big a commitment as you want and anyone can get involved. We are interested in gaining the views of as wide a range of people as possible and there are a variety of ways of getting involved to suit different interests. We can also support you and provide training to take part in PPI activities.
If you would like further details about opportunities to become involved please contact Gwynneth Cracknell on G.T.Cracknell@leeds.ac.uk or 0113 3924476.
View of Sue Watson on being a member of the PPI Group:
“I think the PPI group is great because it is open to anyone, it’s just for ordinary people with an interest in health research. You don’t need medical or formal training to be involved in the group. Anyone can give as much or as little time as they can, and everyone is welcomed no matter what their background. I get to meet others with the same interests as me, and I have the knowledge that our help today will benefit those with similar musculoskeletal conditions in the future (Sue has arthritis). This really helps the group as a whole to gain confidence in our involvement, and really feel that we are making a positive difference.”
Researcher Laura Horton describes how PPI enhanced her research project:
“My study required the development of a patient information booklet. I circulated an early draft to the members of the PPI group and received many constructive and detailed replies to my request for feedback on the content and style of the booklet. In response to the suggestions, I changed the font, font size, added some pictures, got rid of jargon and clarified some sentences which were previously slightly ambiguous. As well as this I re-ordered some of the sections of the booklet in order to make the text flow more intuitively. Without the input of the PPI group, the booklets would not have been as well received and easily understood by the participants of my study. The patient information booklets are essential in the process of informed consent, so it is of paramount importance to get them right”.
Our vision is that Patient and Public Involvement and Engagement (PPIE) will be integral to everything we do and that Patient and Public Involvement Members will be our partners and reflective of our communities of interest. We have developed this strategy in partnership with NIHR Leeds Clinical Research Facility, PPI members and partners. The strategy is accompanied by an action plan which outlines how we intend to achieve the objectives we refer to in our strategy.
Patient and Public Involvement and Engagement Strategy CRF-and-BRC-PPIE-Strategy.pdf (69 downloads)
Patient and Public Involvement and Engagement Action Plan PPIE-Action-Plan-.xlsx (72 downloads)
One of our most popular activities is our “Ask the Researcher” seminars held approx. every 6 weeks for patients to find out more about the research that is happening within the NIHR Leeds BRC, have their questions answered and provide valuable feedback. Previous and upcoming Ask the Researcher events can be found on the events page. An example topic was Footwear Challenges and Solutions. Find the presentation here: Footwear - Challenges and Solutions Presentation (189 downloads)
Patients and public are encouraged to propose topics for future ‘Ask The Researcher’ events. Feedback from people who have attended our events has been extremely positive and we have adapted the meetings to make them more informative, interactive and enjoyable by acting on this feedback.
If you would like further information about our programme of events please contact Gwynneth Cracknell on G.T.Cracknell@leeds.ac.uk or 0113 3924476.
“I Am Research” events to raise awareness of the opportunities for patients to take part in medical research are held every year in the NIHR Leeds BRC on or around International Clinical Trials Day on 20 May. This date commemorates the anniversary of the very first clinical trial by James Lind and offers an opportunity for those working in health research to take action to raise the profile of research in the NHS in England. Read more here