Get involved with PPIE at Leeds 

We want you to choose how you get involved with us. We support this by offering different ways for you to share your voice and experience, including: 

  • Joining a focus group for a condition/area you are interested in/affected by. 
  • Providing advice on applications for funding and the design of research studies. 
  • Being part of a group or network of patients and carers to make sure the voice of people is at the centre of the research. This is sometimes called a ‘Patient Advisory Group or Network’ 
  • Attending events to find out more about our research activity and the condition areas we cover. 
  • Reviewing information materials for patients to make sure they are clear and easy to understand. 
  • Raising awareness of research by attending events and engaging with the local community. 
  • Sharing your story of being part of health research. 
  • Receiving our newsletter. 
  • Helping with the development and delivery of our PPIEP strategy as part of our ‘PPIEP Oversight Group’ 
  • Taking part in our training or supporting us to deliver it. 
  • Sharing your PPIE experiences to support more people to get involved. 

For more information, or if you need the information in another format, please contact us at PPIBRC@Leeds.ac.uk or on 0113 3924474

If you would like to find out more and get involved, sign up to our mailing list by clicking the button below. 

Our mailing list is where we share current opportunities and events, our seasonal newsletter, and general updates from the NIHR Leeds BRC.  

Why get involved? 

By getting involved you will play an important part in helping to shape and develop health research. Having the experiences of people at the centre of research helps to make sure that it is done in a way that includes and benefits everyone. There are many different reasons why people get involved, some of these include: 

  • To develop new skills and learn more about health research. 
  • To learn more about a health condition and the ongoing research relating to it. 
  • To make a difference to the lives of others and help shape future healthcare. 
  • To give back to the NHS 
  • To make sure health research takes account of the experiences of all people regardless of age, gender, ethnicity, etc. 
  • To work with inspiring teams and to connect with people with similar experiences. 

Your time and contributions will always be recognised, and we will offer payment of expenses such as travel, care costs, and energy costs. Different projects will also offer recognition payments, such as a shopping voucher, or training opportunities.  

You can find out more by downloading our Welcome Pack – an introduction to PPIE at Leeds BRC, what it involves, how you can become involved and our code of conduct